United Leukodystrophy Foundation (ULF) Conference in Dekalb, Illinois April 17-19, 2008

All families interested in attending the scientific and family meeting for Zellweger spectrum and RCDP, should let Paula Brazeal or Janet Rhead at the ULF know. This is to ensure rooms, coordination and scheduling.

Contact information: Janet Rhead JanetR@ulf.org or PaulaB@ulf.org or 1-800-728-5483

You can visit www.ulf.org for more information 

 

As parents of RCDP children we are a vital part of RCDP research. Dr.Braverman needs all of us to complete a couple of questionnaires before the ULF meeting in April 2009.  Please email maryellis96@yahoo.com for a copy of the questionnaires. You need to mail your completed questionnaire to Dr.Braverman before the end of March 2009.

 

Mail to: Nancy Braverman, MS, MD

Associate Professor

McGill University and the Montreal Children's Hospital Research Institute

4060 St Catherine West, Montreal

QC, Cananda H3Z 2Z3

 
 
 
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